This press release describes a new 5-year cooperative agreement from the federal Maternal and Child Health Bureau (MCHB) to the American Academy of Pediatrics (AAP) to form a new national center for the system of services for children and youth with special health care needs. The AAP will form a National Center Consortium with The National Alliance to Advance Adolescent Health/Got Transition, Boston University’s Catalyst Center, and Family Voices. This initiative, guided by a project steering committee, involves assisting state Title V programs and other key stakeholders in implementing MCHB’s Blueprint for Change, their national agenda, which calls for research, policy, and practice-level steps in health equity, CYSHCN and family well-being and quality of life, access to services, and financing of services. The National Center’s key activities will include assessment of system-level gaps and emerging needs and pilot testing of innovative strategies in 5 states (years 1 and 2) followed by implementation of the Blueprint Roadmap in partnership with a diverse group of families, individuals with lived experience, clinicians, policy experts, and payers (years 3-5). See more →
Read MoreThis press release describes a new grant award from the Lucile Packard Foundation for Children’s Health (LPFCH) to address the cliff that low-income youth with special health care needs (YSHCN) face as they age into adulthood and lose their child eligibility status in 4 major public programs: Medicaid, Children’s Health Insurance Program (CHIP), Supplemental Security Income (SSI) Program, and Title V Programs for Children with Special Needs. See more →
Read MoreA guide containing a step-by-step approach for state Medicaid and managed care organizations (MCOs) as well as commercial payers interested in starting a VBP initiative around pediatric-to-adult transitional care. See more →
Read MoreThese business case statements offer a call to action for payers – both Medicaid and commercial insurers – to pay for pediatric-to-adult health care transition (HCT) services. They provide background information about HCT and a description of how payers can cover HCT services. These resources, which were produced with funding support from the Lucile Packard Foundation for Children’s Health, can be shared with payers to encourage payment for these services. Click here for a Medicaid version, and click here for a commercial payer version.
Read MoreThis press release explains the new grant award from the Maryland Department of Health's Office for Genetics and People with Special Health Care Needs to improve the transition of students with mental health conditions served by school mental health programs using Got Transition’s Six Core Elements of Health Care Transition. See more →
Read MoreThis press release describes a new grant award from the Lucile Packard Foundation for Children’s Health (LPFCH) to develop a health care transition measurement framework and a set of existing quality measures for use in pediatric-to-adult transitional care. See more →
Read MoreThis report offers options of contract provisions that state Medicaid agencies and managed care organizations can use or adapt to improve the availability of pediatric-to-adult health care transition services. See more →
Read Moreby Margaret McManus, Patience White, Annie Schmidt, Michael Barr, Carolyn Langer, Kevin Berger, Allysa Ware. Health Policy OPEN. 2020;1:100007.
This article offers a series of implementation, payment, and research options to accelerate the adoption of recommended transition processes in both pediatric and adult systems of care. See more →
Read MoreThis policy brief shares a set of six opportunities for the Department of Health Care Finance to improve receipt of health care transition (HCT) services among publicly insured youth and young adults in the District of Columbia. See more →
Read Moreby Annie Schmidt, Samhita Ilango, Margaret McManus, Katherine Rogers, Patience White. Journal of Pediatric Nursing. 2020;51:92-107.
This systematic review strengthens the evidence that a structured HCT process for youth with special health care needs can show improvements in adherence to care, disease-specific measures, quality of life, self-care skills, satisfaction with care, health care utilization, and HCT process of care. See more →
Read MoreThe National Alliance to Advance Adolescent Health has received funding from the WITH Foundation to improve the transition for young adults with intellectual and developmental disabilities (IDD) from pediatric to adult health care. The National Alliance will partner with The HSC Health Care System in Washington, DC to implement this first-of-its-kind transition value-based payment model. See more →
Read MoreThe National Alliance to Advance Adolescent Health has received funding from the Lucile Packard Foundation for Children’s Health to develop a strategic dissemination plan to increase the use of value-based payment (VBP) and care delivery recommendations by payers for pediatric-to-adult health care transition. See more →
Read MoreFebruary 15, 2019
The National Alliance to Advance Adolescent Health, along with a number of organizations, provides recommendations to the transition-related research theme of National Institute of Child Health and Human Development’s (NICHD) Strategic Plan for Fiscal Years 2020-2024. See more →
Read MoreJanuary 17, 2019
A letter with Public Comments to the Secretary’s Advisory Committee on National Health Promotion and Disease Prevention Objectives for Healthy People 2030 on the proposed Healthy People 2030 objectives. See more →
Read MoreMargaret McManus, Patience White, and Annie Schmidt. The National Alliance to Advance Adolescent Health, September 2018.
To address long-standing gaps in payment for transition to adult care, this report presents new value-based payment (VBP) recommendations for pediatric to adult health care transition. Funded by the Lucile Packard Foundation for Children’s Health, this report is intended to guide commercial and Medicaid payers, health plans, employers, and pediatric and adult systems of care in implementing and evaluating VBP options for transitional care. The report is a result of an expert panel of payers, plans, professional organizations, and advocacy groups convened by The National Alliance to Advance Adolescent Health and 65 key informant interviews with major stakeholder groups. See more →
Read Moreby Samhita Ilango, Margaret McManus, and Daniel Beck. Got Transition, September 2018.
This report summarizes the health care transition (HCT) efforts of 32 states that elected to prioritize HCT as one of their five selected priority NPMs (in addition to the District of Columbia and Puerto Rico) as reported in state Title V agencies’ 2018 Block Grant Applications. The report highlights examples of HCT innovations pertaining to 1) education and leadership development with families and youth; 2) outreach and education efforts with health care professionals; 3) communication and social media efforts to update and disseminate state-of-the-art HCT information; 4) systems development efforts with sister state agencies; and 5) practice improvement initiatives. The report also offers a detailed set of recommendations for the 2020 State Title V Action Plan, due in 2019, which will lay the groundwork for the following five years. See more →
Read MoreBy Patience White, Annie Schmidt, Margaret McManus, and Charles Irwin, Jr. Got Transition, June 2018.
A Preventive Care and Transition Toolkit developed by Got Transition in collaboration with University of California, San Francisco’s (UCSF) Adolescent and Young Adult Health National Resource Center. It provides suggested questions and anticipatory guidance for clinicians to introduce health care transition during preventive visits with early adolescents (ages 11-14), middle adolescents (ages 15-17), late adolescents (ages 18-21), and young adults (ages 22-25), consistent with the AAP/AAFP/ACP Clinical Report on Health Care Transition. See more → (ALSO En Español)
Read MoreFebruary 2, 2018
Comments to the Social Security Administration regarding its Request for Information on Strategies to Improve Adult Outcomes for Youth Receiving Social Security Income (SSI), focusing particular attention to the distinct needs of transition-age youth and young adults, ages 14 to 25. See more →
Read MoreApril 7, 2017
Comments to the Centers for Medicare and Medicaid Services regarding their Pediatric Alternative Payment Model Concepts, which urge CMS to consider the population of Medicaid and CHIP-insured adolescents and young adults with behavioral health conditions, intellectual/developmental disabilities, and/or complex medical conditions who are between the ages of 16 and 25 and moving from pediatric to adult service systems. See more →
Read Moreby Margaret McManus, Daniel Beck, and Patience White. Got Transition 2016.
This report offers strategies for state Title V agencies that have selected transition as one of their to help them link performance improvements and innovations for transition with medical home, adolescent well care, well care for women, and adequate health insurance. See more →
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