This press release describes a new 5-year cooperative agreement from the federal Maternal and Child Health Bureau (MCHB) to the American Academy of Pediatrics (AAP) to form a new national center for the system of services for children and youth with special health care needs. The AAP will form a National Center Consortium with The National Alliance to Advance Adolescent Health/Got Transition, Boston University’s Catalyst Center, and Family Voices. This initiative, guided by a project steering committee, involves assisting state Title V programs and other key stakeholders in implementing MCHB’s Blueprint for Change, their national agenda, which calls for research, policy, and practice-level steps in health equity, CYSHCN and family well-being and quality of life, access to services, and financing of services. The National Center’s key activities will include assessment of system-level gaps and emerging needs and pilot testing of innovative strategies in 5 states (years 1 and 2) followed by implementation of the Blueprint Roadmap in partnership with a diverse group of families, individuals with lived experience, clinicians, policy experts, and payers (years 3-5). See more →
Read MoreNine concrete opportunities to improve and enhance mental health services for children and adolescents, as proposed by a coalition of diverse organizations. See more →
Read MoreThis press release describes a new grant award from the Lucile Packard Foundation for Children’s Health (LPFCH) to address the cliff that low-income youth with special health care needs (YSHCN) face as they age into adulthood and lose their child eligibility status in 4 major public programs: Medicaid, Children’s Health Insurance Program (CHIP), Supplemental Security Income (SSI) Program, and Title V Programs for Children with Special Needs. See more →
Read MoreA toolkit with two tip sheets to assist primary care teams and their young adult patients with ID/DD to plan for disasters and emergencies. The toolkit was developed with an expert advisory group with members from the major primary care professional societies and disability advocates, and it is available in both English and Spanish.
Read MoreA guide containing a step-by-step approach for state Medicaid and managed care organizations (MCOs) as well as commercial payers interested in starting a VBP initiative around pediatric-to-adult transitional care. See more →
Read MoreThese business case statements offer a call to action for payers – both Medicaid and commercial insurers – to pay for pediatric-to-adult health care transition (HCT) services. They provide background information about HCT and a description of how payers can cover HCT services. These resources, which were produced with funding support from the Lucile Packard Foundation for Children’s Health, can be shared with payers to encourage payment for these services. Click here for a Medicaid version, and click here for a commercial payer version.
Read MoreThis press release describes a new grant award from the WITH Foundation that will assist primary care providers to care for young adults with intellectual and developmental disabilities during pandemic and emergency situations. See more →
Read MoreThis press release explains the new grant award from the Maryland Department of Health's Office for Genetics and People with Special Health Care Needs to improve the transition of students with mental health conditions served by school mental health programs using Got Transition’s Six Core Elements of Health Care Transition. See more →
Read MoreThis press release describes a new grant award from the Lucile Packard Foundation for Children’s Health (LPFCH) to develop a health care transition measurement framework and a set of existing quality measures for use in pediatric-to-adult transitional care. See more →
Read MoreThis report offers options of contract provisions that state Medicaid agencies and managed care organizations can use or adapt to improve the availability of pediatric-to-adult health care transition services. See more →
Read Moreby Margaret McManus, Patience White, Annie Schmidt, Michael Barr, Carolyn Langer, Kevin Berger, Allysa Ware. Health Policy OPEN. 2020;1:100007.
This article offers a series of implementation, payment, and research options to accelerate the adoption of recommended transition processes in both pediatric and adult systems of care. See more →
Read MoreThis policy brief shares a set of six opportunities for the Department of Health Care Finance to improve receipt of health care transition (HCT) services among publicly insured youth and young adults in the District of Columbia. See more →
Read Moreby Samhita Ilango, Annie Schmidt, Margaret McManus, Wun Jung Kim. Journal of the American Academy of Child & Adolescent Psychiatry. 2020;59(4):501-503.
This commentary calls for improving the national projections of the future child and adolescent psychiatry workforce to address the serious, growing, and unmet need for mental and behavioral health services among children, adolescents, and young adults (C/A/YA) in the United States. See more →
Read Moreby Annie Schmidt, Samhita Ilango, Margaret McManus, Katherine Rogers, Patience White. Journal of Pediatric Nursing. 2020;51:92-107.
This systematic review strengthens the evidence that a structured HCT process for youth with special health care needs can show improvements in adherence to care, disease-specific measures, quality of life, self-care skills, satisfaction with care, health care utilization, and HCT process of care. See more →
Read Moreby Annie Schmidt and Margaret McManus, January 2020.
This report summarizes factors influencing adolescent well-care performance in six top-performing state Medicaid programs. State Medicaid officials from the states with the highest adolescent well-care visit performance – RI, CT, TX, NY, NH, and MA – were interviewed to understand the factors contributing to their success. See more →
Read MoreThe National Alliance to Advance Adolescent Health has received funding from the WITH Foundation to improve the transition for young adults with intellectual and developmental disabilities (IDD) from pediatric to adult health care. The National Alliance will partner with The HSC Health Care System in Washington, DC to implement this first-of-its-kind transition value-based payment model. See more →
Read MoreApril 22, 2019
Comments to the Health Resources and Services Administration expressing concerns from numerous organizations about HRSA’s latest behavioral health workforce projections and offering suggestions for future improvements in workforce estimates for behavioral health professionals caring for children, adolescents, and young adults. See more →
Read MoreThe National Alliance to Advance Adolescent Health has received funding from the Lucile Packard Foundation for Children’s Health to develop a strategic dissemination plan to increase the use of value-based payment (VBP) and care delivery recommendations by payers for pediatric-to-adult health care transition. See more →
Read MoreFebruary 15, 2019
The National Alliance to Advance Adolescent Health, along with a number of organizations, provides recommendations to the transition-related research theme of National Institute of Child Health and Human Development’s (NICHD) Strategic Plan for Fiscal Years 2020-2024. See more →
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